On being forged into a warrior mom
If I could summarize our journey from Hell to HOPEISM, it would be in my faith, which I call HOPEISM. It has been my weapon of choice to get me through each battle I have had to fight in my mission to win our war called life with autism and seizures. Vaccine injury to be more specific. It would also be in committing to heart, soul, & mind the words and motto's from Forged, NDCQ, the Lone Survivor, and Levi Lusko in his book, "Through the Eyes of a Lion." I will be forever grateful to the inspiration, encouragement, and mental fortitude found through all of them collectively. Because of that, I am not allowing this tragedy of vaccine injury that has come into our lives to be an obstacle to being used by God. I am instead turning it into an opportunity to be used like never before!
This blog is dedicated to Brandon. His life has been forged by difficulty, obstacles, & all too often because of seizures - pain, blood, broken teeth, & broken bones. Yet through all that he has shown such fortitude. The bravery, strength, & resilience of a true warrior. He taught me that having strength through adversity means that even if you lose every battle, like the Lone Survivor, you never quit fighting until you win the war. That in the words of "NDCQ," you keep "dreaming," keep "daring," & keep "doing." As Team Guppy has yet to be able to escape vaccine injury, we have no choice but to as Levi Lusko writes, "Run toward the Roar." God has indeed given us such incredible power in enduring such impossible pain.
Some days the HOPEISM in that simply takes my breath away.
October 18, 2011
Life with Autism -- in pictures...
This is my son Brandon. It had been two weeks since his last Grand Mal Seizure. But today, the day after I was bragging about that "seizure-free" factoid on Facebook, -- he had a hard seizure. It took three of us at school to get him in my van, and it took my neighbor and I to get him out of my van once home and into my bed. (Note to Self: Always be prepared when your male neighbor may have to help you carry your son in your bedroom by putting your bra's away and not leaving them on the bed)
Brandon and I laid there side by side, just chilling together for a couple hours. He just likes someone close.... Hence my love for Country Music now. For the past fourteen months, Brandon and I have spent a lot of time chilling together on the bed, watching the Country Music channel...
Then, after a couple hours of that, he wanted to get up. It was the first beautiful day in Houston since March, so we went in the backyard. Brandon's favorite thing to do is jump on the trampoline. He knew he couldn't jump, he was still weak, but he loves his trampoline. So he just sat there in the breeze, in the sun, content. He didn't need to jump to be content, he just needed to be where he loved to be.
As I took pictures of his sweet serenity, I couldn't help but marvel at that. All my plans for the day were derailed. Yet again. The first chilly morning in forever when I could walk and not sweat on the Nature Trails, I didn't even get to go enjoy it! Matt had truck issues I had to help him with. Then when I was done with that, I got a call from Brandon's school about the seizure.
A mosquito buzzed into my world, and I dared to let that irritate me.
My sweet son suffered yet another seizure that rendered him unable to jump on his beloved trampoline, yet he still found contentment in just sitting there.
Oh how I love you my Brandon...
How for someone completely non-verbal, you say so very, very much.