From Hell to HOPEISM ~
My journey through life with autism, seizures, - and a side of crazy, mad, wonderful.
On being forged into a warrior mom
If I could summarize our journey from Hell to HOPEISM, it would be in my faith, which I call HOPEISM. It has been my weapon of choice to get me through each battle I have had to fight in my mission to win our war called life with autism and seizures. Vaccine injury to be more specific. It would also be in committing to heart, soul, & mind the words and motto's from Forged, NDCQ, the Lone Survivor, and Levi Lusko in his book, "Through the Eyes of a Lion." I will be forever grateful to the inspiration, encouragement, and mental fortitude found through all of them collectively. Because of that, I am not allowing this tragedy of vaccine injury that has come into our lives to be an obstacle to being used by God. I am instead turning it into an opportunity to be used like never before!
This blog is dedicated to Brandon. His life has been forged by difficulty, obstacles, & all too often because of seizures - pain, blood, broken teeth, & broken bones. Yet through all that he has shown such fortitude. The bravery, strength, & resilience of a true warrior. He taught me that having strength through adversity means that even if you lose every battle, like the Lone Survivor, you never quit fighting until you win the war. That in the words of "NDCQ," you keep "dreaming," keep "daring," & keep "doing." As Team Guppy has yet to be able to escape vaccine injury, we have no choice but to as Levi Lusko writes, "Run toward the Roar." God has indeed given us such incredible power in enduring such impossible pain.
Some days the HOPEISM in that simply takes my breath away.
May 25, 2022
An autism "All I Can Handle" Mother's Day confession...
June 17, 2021
Cast of Characters: What the Tide Brought In...
Every book has a cast of characters....
For my time in Barnegat Light, NJ -- in what is termed, "Michelle's Great Escape" - these are characters in my cast...
My Mom... Barbara Buttram.
She has a servant's heart and an Italian's temper. As do all of us at "Team Dotter" - how could we not? An Italian Grandmother and a German Grandfather! Mom loves life, her family, and the shore. I heard her comment to someone at the shorehouse that she's a "wallflower" - but she is anything but. She is talented, vivacious, loved. I should tell her that more. Any strength I have, I get from her. Her life hasn't been easy - she's had many disappointments and discouragements - but she has always dug in and endured. She took care of my brother and I as a single mother for many years. We may have been considered poor - but what we didn't have in money, she made up for a thousand-fold in memories - love of family, of Christmas, and the seashore. I can endure what I must in my "Life with Autism, Seizures, & a side of PANDAS", because she endured what she had no choice but to endure. My strength, came from her adversity. The best things in my character, were forged from the best things in hers. It was a blessing to be with her this summer in Barnegat Light -- seeing the joy in her eyes, hearing the stories of her childhood memories there, watching her collect the seashells in the sand. I can't wait to go back next year with her. And you will, Mother, go back with me next year. And the year after. And the year after that...
I will cherish this time at the shore house with her -- I am Thankful, Grateful, & Blessed that she had this time for her - as I had it for me!
On one trip to Surf City 5 & 10 where this below picture was taken - on the way there she showed me where my father worked when they were together.
Sometimes it's hard to get a genuine smile out of her..... but after this particular trip to the souveneir shop, I now know how to get her to smile big for a picture...
Right before I took this snapshot, I told her to "Smile like you did the night I was conceived!"
Yep - that did the trick.
My Uncle - George Dotter, Jr.
Larger than life for as long as I can remember. He and my Uncle Joe were my "Mafia-Uncle's" - Italian to the core, literally looking like they could have played lead roles in "The Godfather" movies. In fact, there was a time or two I remember referring to them as just that....being in the Mafia. It saved me a time or two from people making fun of my Polish last name -- Baginski.
Uncle George is perhaps one of my favorite people in the whole wide world. We have a brotherhood/sisterhood in that I think we both see ourselves as the "black sheep of the family" as it relates to standards the world measures a man, or woman, by. Perhaps that's why I love him as I do. He is real, genuine, grounded in truth & transparency. For me at least - that has been a curse more than a blessing it seems. Where many are fake, with us, what you see is what you get. We say what we mean, and mean what we say, and I for one, wouldn't want to live life any other way. Through the years, he has been the only one in this world who has ever reached out to me consistently. Always the first to call on a holiday. Always. Every time a holiday would be upcoming, I would make a mental note to call him first! But I always get busy, or forget. He, never has. That has brought such comfort to me all these years -- just knowing my Uncle George loves me enough to make sure he calls me and checks on me. And if I made the ghastly mistake of telling him "bye" when we hang up - he will call right back and admonish me that you never say "good-bye" - you say "see ya later." One hundred years from now when he's allowed to die - that will be on his gravestone.... A simple, "See ya."
He absolutely spoiled us while there - I never knew he was such a great cook; - and the night we had our shell-painting-pocalypse, he proved to be quite the artist as well.
Uncle George is as salty as the sea with a depth of character as deep as the beaches are long.
He loves his son like no one's business, is a loyal friend, a devoted family-man, and beloved fisherman at heart.
He would do anything for you - he would give his right arm for a friend, his life for family, and one day on a dock in Florida years ago, he gave his left eye freeing a Blue Heron who got tangled in his fishing line.
I'll never forget that this night-owl got up at zero-dark-thirty to walk to the South Jetty with me to watch the sun rise.
When Todd & I went Kayaking in the bay in our sinking ship in a thunder storm, I knew that if we were swept out to sea he would search for us until he found us. And I was right. When we made it back to the dock, I saw him at the Bait & Tackle Shop borrowing a pair of binoculars to see where we were...
It has been an absolute joy to have that time with her at the shore house! It would not have been complete without her!
The "Jersey-girls" as we called ourselves made for such lighthearted times of lunacy & laughter!
And oh my goodness - can my Aunt Elaine make some killer pizza, porkroll, pissers, & dessert!
I cannot wait for next summers adventures!
And food!
The Jersey girls! |
I don't have many memories of Mike simply because we live so far apart and I've only like been in the same room with him about 3 times in the last twenty years or so!
I am so Thankful, Grateful, & Blessed for these past two weeks spent with him! He is a remarkable young man and the love he has for his father is so evident! I hope he enjoyed being with us as much as all of us certainly enjoyed being with him! He taught me much, about many things. He's smart and well rounded in a myriad of intellectural musings; and as the picture shows - he's funny as hell.
God Bless him, he endured playing continental rummy with us for the first time ever!
As a vegetarian, he has taught me many recipes in our short time there!
He's such a good sport - even though he doesn't eat seafood, he went fishing and clamming with us; and even though we weren't crabbing - he caught one of those too!
I enjoyed our time going to the coffee-shop and watching the sunset!
I cannot wait until next summer!
She represents the 4th Generation of LBI'ers to grace the grounds of greatness! Her chapter here is just the beginning of a great book to come - and I hope to be a part of it as much as I can! Already an accomplished world traveler - I hope she comes to call this place her favorite - as so many of us do! She was such a trooper from climbing the crow's nest to fishing to packing and unpacking as we played musical shore houses! She was there for only a few quick days - but I hope that was just enough to catch "Old Barney" fever!
I love him unconditionally and was so thankful, grateful, & blessed that he could be there with us if only for just a few short days! We tried to do as much as possible in his time there - and have already decided to go back next summer! This year he could only bring Aly - but next year the whole crew - I cannot wait!
I'm sure Uncle George appreciated his visit most - in that it gave him a break from cooking!
My brother is the "beefmaster" of the grill - and dang he can cook some steaks, fajitas, & burgers!
In his own way, he too came for healing - and I so loved seeing the times he was able to totally relax. I pray that next summer when he can stay longer - he can totally have a time as I did, of total unwinding and revival!
He even rented a boat for us while there - maybe next year he'll be rewarded for that generosity and catch the most, and biggest, fish!
I felt like I was hidden under a mountain of mundane tasks that didn't seem to make much difference in the world...
In the words of the Mad Hatter, "I used to be much muchier".
I lost my muchness....
A song that I fell in love with right before I left - has the line, "I was blind but now I see....just an old hallelujah with a new melody!"
This trip was my "Old Hallelujah with a New Melody!"
I saw an old island through new eyes and indeed came home singing a new melody!
I will forever marvel at that.
Well, that, and the fact that I got up at 4:30am to walk the beach to the South Jetty to sit on the rocks and wait for the sun rise........
He truly is the rock of Team Guppy. I love him, and how he has walked endless miles on the beach and jetty, kayaked endless hours in the bay, and is slowly but surely with each trip there, - understanding why I love Barnegat Light so very much. His love & servive for the Lord both humbles and inspires me.
What a remarkable dog she is.
She is just what we all needed while there - icing on the cake of a most magical, memorable, miraculous time with family.
All of these people, and the dog, made for an incredible cast of characters in this fairytale time of family.
I cannot wait until next summer - to see them all again - and whoever else the tide brings in!